Guest Editors Thomas O.F. Wagner Thomas O.F. Wagner is a professor of internal medicine, and from 1997 to 2016, was Head of the Department of Pneumology and Allergology, as well as Head of the Christiane Herzog CF Center for Children and Adults, at University Hospital Frankfurt (Frankfurt, Germany). Since 2010, he has been Head of the Frankfurt University Hospital Reference Centre for Rare Diseases (Frankfurt). Thomas received his medical and research training at Bonn University (Bonn, Germany) and Freiburg University (Freiburg, Germany), and his post-doc training at Colorado State University (Fort Collins, CO, USA) and at Medizinische Hochschule Hannover (Hannover, Germany). He is an MD, holds a PhD equivalent (Prof. Dr med. habil.) and has board qualifications in pneumology, allergology, endocrinology and intensive care medicine. Thomas’ main research activities include lung transplantation, cystic fibrosis, ventilator therapy, rare diseases, and public health issues, including the economics of healthcare. He has numerous publications and has supervised more than 25 medical dissertations. Thomas is the Coordinator of the European Reference Network for Rare Diseases of the Respiratory System (ERN-LUNG https:// He has been a member of the European Commission (EC) Rare Diseases Task Force (EUCERD), is an active partner in the RD Joint Action and coordinates a number of European and national projects (ERN-LUNG, the RD Registry Data Warehouse, eSupport, etc.). Since his active role in a European pilot project in RD networking (ECORN-CF), a European online expert advisory board for patients and care team members, Thomas has been heavily involved in European networking projects, bringing together patients, patient organisations and all care team members. ECORN-CF is a good example of his networking skills: after initial funding from the EC, the project is now sustainably supported by patient organisations, more than 12 years after its starting date. Copyright ©ERS 2023. Print ISBN: 978-1-84984-166-5. Online ISBN: 978-1-84984-167-2. Print ISSN: 2312-508X. Online ISSN: 2312-5098. viii
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